Good early morning/late night. MMC! Coming live from a hospital bed just to talk to you and before any of you say told you so...
I'm going to be honest, I've had a scare in the last 24 hours or so. Last evening heading to bed, the rash only continued to spread, became more itchy/burning and I was at my worse. I noticed that I also was delveoping ulcers inside my mouth, which can be life threatening, due to air swelling an closure. I called DH, he immediately came home from work and took me to the ER. I wasn't there long and was given medication to help with the itching, rash, and swelling. Not even one minute after all the meds were started, I began to seize. I was given meds to stop them, but I occasionally still seized. They transferred me to the facility back where I live and was told that they may have to fly me to Pittsburgh if I became too bad. Three different physicians are on my case and came in and told me the same thing. They believe I have what is called Steven Johnson's Syndrome, which is a rare condition, only 20,000 people get a year, from a serious reaction to a few drugs. They state that my case is only considered mild/moderate, but that if it would have became more severe and I would have waited another 48 hours, I would have died. They said thankfully I was smart enough to know when it progressed to my mouth, it was time to get checked, because a lot of people don't and then it's too late.
They've been giving me blood thinners, steroids, and a another new anti-convulsant drug to try for my seizures. They said I will at least be here until Friday, possibly longer and then they'll figure out how long they want me off of work, to make sure everything is working through my system right. It sounds like it could 4-6 weeks.
I thank you for all your prayers and continue to ask for them. I thank the Lord above that he was listening and directed me in the right way.
I am heading to get some shut eye. Good night!
